Our twin boys were born on September 24th, and they spent the majority of their first three weeks in the NICU. One of our sons, Rykker, was diagnosed with Spinal Muscular Atrophy (SMA), a rare condition that affects and diminishes the motor neurons—nerve cells responsible for functions such as breathing, eating, and walking. Rykker has type 1 SMA, which is the most severe form, and unfortunately, many infants diagnosed with this type are not expected to survive beyond two years of age. Since his diagnosis, Rykker has undergone two treatments—Zolgensma and Evrysdi—and he visits 4 to 6 specialists each week to manage his condition. Currently, he is receiving a second round of treatment involving a helmet and a body brace. Additionally, we have acquired a number of specialized pieces of equipment, including an oxygen machine, a shaker vest, two breathing devices, a custom car seat, specialized seating solutions, and several other essential items. Furthermore, Rykker requires travel to Stanford for consultations and appointments, which is a 3-hour and 45-minute drive, along with visits to Valley Children’s Hospital. He is also in need of an electric wheelchair to assist with mobility. The urgency for funding is critical to meet Rykker's ongoing needs, ensuring he has the necessary tools and resources to give him the best chance in his battle against type 1 SMA.